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When
mom was diagnosed with Alzheimer's disease, we as a
family, my brother Leland, my sister Joni and myself
(Linda), knew we wanted to care for mom as long as we
could. The property next to me went on the market
and
we decided to purchase it, so mom would be close. I
have my beauty salon in my home, so the location
couldn't have been better. My sister Joni moved in
with mom to care for her. I checked on her during
the day, while my sister was at work. As the
disease took more of her, to keep her from wandering
or leaving the yard we fenced in our yards and
padlocked the gates, except for the one between our
yards. Mom would walk down between the houses (we
have walk out basements) in the morning with her
long flannel nightgown and her Red Campbell
Soup ball cap on, she looked so cute (she was
retired from the Campbell Soup Company). Mom would
come through the gate and into the salon, it was
always fun having her visit - my clients would chit
chat with her and her with them. Everyone had a
great time!
Mom was always so sweet, calm, patient and so
loving, then Alzheimer's Disease took all of that
away. As the disease progressed her personality
completely changed. The Mom we knew was slowly
leaving us. She would pull on her clothes, yell,
get angry, argue with us. We were afraid of her
hurting herself by leaning over from her wheel chair
trying to pick something up off the floor when there
was nothing there, only an illusion, which is also
part of this debilitating disease. That's when the
Play Pillow idea came into focus, I then realized
she needed something for her fingers to feel, her
hands to hold and her arms to squeeze. After I
started making them for her she calmed as she had
the pillow on her lap where it was visible,
reachable, and touchable. I've had many people ask,
"how did you come up with the idea?" My answer was
and is, "Watching My Mom!"
As time went on, the disease was taking a strong
hold on mom, so we knew we could no longer keep her
at home. The doctor told us she needed round the
clock care, so we had to make the hardest decision
of our lives!!! We had to place her in a Nursing
Home. Joni and I were with her every evening until
she went to bed. Leland visited her as often as he
could - he lives out of town, so it was more
difficult for him to visit as often.
Mom's hemoglobin was continuing to going down so she
was needing blood transfusions on a regular basis.
It was so heart wrenching seeing her with the needle
in her arm and not being able to move from that
location for 4 - 8 hours, depending on how many
units of blood she needed, and she didn't understand
why. Another very, very difficult decision had to
be made. We as a family, once again, had to make
the most difficult decision. We decided we needed
to think of mom instead of ourselves and told the
nursing staff, no more transfusions. It was a river
of tears.
We know mom is with the Lord and dancing the polka
with dad! |